Family Support
At OPWSA, we know that caring for a loved one with Prader-Willi Syndrome can be challenging. As PWS is a rare syndrome, (affecting only one in every 15,000 births) sometimes finding the support and understanding that you and your family need can feel impossible.
Our goal as an organization is to bring the support, kindness, and listening ears that a family who is affected by PWS needs and deserves. Whether you’d prefer to connect one-on-one with our Executive Director, or you’d like to be in touch with other families who understand PWS firsthand, we can help you find the support you’re looking for.
Learn techniques, tips, and tricks from other families, find a community to comfort you, or even just tell your story to get it off your chest. You don’t have to be alone while caring for someone with PWS, there’s a community of people right here who are ready to help support you and your family!
If you’re interested in learning more about how OPWSA supports families, and how you can be a part of OPWSA’s family support network, contact our Executive Director for more information:
Jennifer Coens
Executive Director
416-481-8657
1-800-563-1123